A Heartbreaking Choice
Offers information and support to parents who have interrupted their pregnancies after prenatal diagnosis revealed severe fetal anomalies.
Anencephaly Support Foundation
Supports parents who wish to continue their pregnancies after a diagnosis of anencephaly.
Carrying to Term
Offers support to parents who choose to continue a pregnancy after a fatal diagnosis.
Cystic Fibrosis Foundation
Offers information and referrals to support groups, medical information and a newsletter.
Provides educational materials and referrals to consumers regarding most birth defects and genetic disorders.
Poor Prenatal Diagnosis – Baby Center Community
Have you gotten unexpected results from prenatal testing? Find support here and talk about your options with others in similar situations.
Poor Prenatal Diagnosis
Dedicated to help parents decide in a time of crises how to proceed and where to turn for help and resources.
National Organization of Rare Disorders
Provides information on rare diseases and a database of support organizations.
National Down Syndrome Society
Offers information and resources for parents and children with Down Syndrome.
National Society of Genetic Counselors
Offers a referral service.
National Tay-Sachs & Allied Diseases Association
Offers support and programs geared to families affected by Tay-Sachs Disease and over 40 other fatal degenerative genetic disorders.
Offers support and resources to families who wish to continue their pregnancies with babies who likely will die before or shortly after birth.
Spina Bifida Association
Provides information on the birth defect.
Support Organization for Trisomy 18, 13 & Related Disorders
Provides support for the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and related chromosomal disorders.